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RussianFAMILY TO FAMILY HEALTH INFORMATION CENTER
PTI Nebraska is proud to serve as Nebraska’s Family to Family (F2F) Health Information Center!
The F2F Health Information Center provides support, information, and training to families who care for Children and Youth with Special Health Care Needs (CYSHCN). CYSHCN are children and youth “who have or are at increased risk for chronic, physical, developmental, behavioral, or emotional conditions and who also require health and related services beyond that required by children generally.” (Source: familyvoices.org)
Staff who work under the F2F Health Information Center grant help parents partner with schools to meet health/medical needs and field questions about:
- School nursing services
- Individualized Healthcare Plans (IHPs) Healthcare procedures in school, including tube feedings, catheterization, tracheostomy care, medication management, diabetes care, epilepsy plans, failure-to-thrive nutrition plans, diaper changes, and more
- How to work effectively with IFSP, IEP, and 504 Teams
Staff also work to enhance access to quality health care and community and state services, which includes providing information on:
- Adult health services and providers
- Working effectively with doctors and other healthcare providers and acquiring advocacy skills to use within the healthcare system
- Developing a family-centered/person-centered, coordinated plan for care and the future
- Health insurance coverage
- Medical and financial resources necessary to achieve improved health outcomes
- Programs such as Medicaid and adult service options within the Nebraska Home and Community-Based Service (HCBS) Waivers
- Supplemental Security Income (SSI) through the Social Security Administration
- Decision-making options, including Supported Decision-Making, Guardianship, Power of Attorney, and Conservatorship
We’re here to help! Our goal is to improve access to quality care and to provide support for families and their children with special healthcare needs in their communities by empowering families with helpful information and advocacy!
Every child deserves the support and services needed to successfully transition to adult health care, employment, and independence. Every child deserves to have the “Good Life” they dream of!
To reach our F2F Health Information Center for information and support, you can fill out our online Intake Form on our website at or call us at 402-346-0525 or 800-284-8520.
Information Sheets
Individualized Healthcare Plans Handout 1
Individualized Healthcare Plan Handout 2
Medical Home Parent-Doctor Focus Sheet
Important Nebraska Department of Health and Human Services (DHHS) Links
General Medicaid Services Information
*Medicaid is a public health insurance program that covers a low-income population, including seniors, children, and people with disabilities
How to Apply for Medicaid if you have a Disability Information Sheet
Katie Beckett Program Info Sheet and FAQs Sheet
*This program is for children under age 19 who live in their parent’s home. It provides Medicaid eligibility to children because of their high level of needs. Only the child’s income and resources are used to determine Medicaid eligibility for children served by the Katie Beckett program
Children’s Health Insurance Program (CHIP) Information
*The Children’s Health Insurance Program, or CHIP, is a program under Title XXI of the Social Security Act which provides health coverage to eligible children in Nebraska. This is for children who are not eligible for Medicaid but are uninsured and meet certain income requirements
Health Insurance Premium Payment (HIPP) Information and Application
https://dhhs.ne.gov/Documents/HIPP%20Application.pdf
*The HIPP program pays for health insurance premiums of Medicaid-eligible individuals if it is cost-effective for the State. This is a cost savings measure for the State and does not affect Medicaid eligibility.
Medicaid Coverage for Unborn Children, 599 CHIP Information
*599 CHIP is designed for unborn children of pregnant women who are otherwise ineligible for coverage under Medicaid or CHIP. This program is not full Medicaid coverage and only applies to prenatal care and pregnancy-related services. These services are connected to the health of the unborn child, including labor and delivery. Eligibility for 599 CHIP Individuals who are interested in the 599 CHIP program must first apply for Medicaid.
Information to Help Plan for Your Loved One’s “Good Life” Into Adulthood
Charting the LifeCourse Person-Centered Planning (PCP) Information and Tools
*Enable accounts, or Achieving Better Life Experience (ABLE) accounts, are tax-advantaged savings accounts for individuals with disabilities, allowing them to save and invest money for qualified disability expenses without jeopardizing eligibility for public benefits like Medicaid or Supplemental Security Income (SSI).
Easter Seals Benefits Planning – Nebraska Work Incentives Planning and Assistance (WIPA)
*Nebraska Work Incentives Planning and Assistance (WIPA) projects promote employment by helping Social Security disability beneficiaries understand and use available work incentives. These special provisions allow individuals to enter or re-enter the workforce while protecting their eligibility for cash and/or health care benefits until they can become self-sufficient.
Nebraska Ticket to Work Information
https://goodwillne.org/How-We-Help/Ticket-to-Work
*Easterseals and Goodwill can provide information on Ticket to Work
*This is a free employment service program developed by the Social Security Administration (SSA). It’s for individuals who are receiving Social Security disability benefits and who are interested in obtaining or advancing in employment. The program provides services to help participants achieve greater independence and self-sufficiency through employment
Goodwill Employment and Career Services
*Services include benefits planning, support for employment, and more
*Provides many services for people with disabilities, including independent living skills training, benefits counseling, assistance in finding and paying for accessible housing, assistance in hiring personal assistants and/or chore providers, and more
Lisa Hobza (who leads the F2F HIC at PTI Nebraska) and her family
“This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number and title for grant amount (H84MC08009, Family Professional Partnership CYSHCN, total $96,700, no other additional funds provided). This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.”